Hi all -
Steve was released from the hospital yesterday at about 2pm MN time. We came straight to the hotel so that he could take a nap! He has been diligently doing his walks and breathing exercises like a good boy. We all ate at the Canadian Honker AGAIN last night because it was close to the hotel and really cold outside. It is amazing how much his appetite has shrunk and changed. He didn't even want the fries that came with his dinner cause they weren't appetizing to him! What a difference having your chest cracked makes!
Steve slept fairly well last night and only woke up a couple of times to get some more medicine and figure out what day it is....still having some issues with that. He was hoping to get on the computer and write you all himself but his brain is still a little fuzzy with spelling and passwords so it was pretty frustrating for him. Hopefully in the next few days that will pass and he can be more communicative on here himself.
Today we met with the genetic counselors to get the ball rolling on getting a genetic test to determine which gene Steve has a mutation in that caused his disease. He has a more rare form of HCM but they gave him about an 80% chance of finding the mutation - which is great. Once they find it then the rest of the family can get tested fairly cheaply so we can rule out Jodi and Jeff and now Katelyn. Plus it means when we have kids they can get tested too and we can rule out all of the echocardiograms if our little ones don't carry the mutation.
We have changed our reservation so that we will be heading back to Seattle tomorrow. We decided that sticking around the hotel another day just wasn't worth the extra rest he might get because we both just want to be HOME! So we'll be in Seattle by dinner time tomorrow and hugging Toby sooner that we thought! I will hopefully have more time to return all of your wonderful calls and texts this weekend.
Thanks for keeping up and we'll be back soon!
Subscribe to:
Post Comments (Atom)
5 comments:
almost home...great to hear. I'm sure that appetite for fries will come back, we'll share a large basket of them over the holidays as you show off the scar from your knife fight. Plenty of salt & grease- just what the recovery will need.
Kellie, thanks again for all the updates.
d
I hope he's not in too much pain now and I'm happy to hear you guys will be going home finally. Getting your chest cracked open does not sound fun at all. He's a real trooper. thanks again for the updates.
Steve, I am so very glad that things have gone and are going well.. I thought that I previously had a few comments but guess I am a low tech kinda-guy, oh well. But, hey the thoughts were always there pullin for ya... I have been reading the updates by your bride and checkin in when I can. I haven't been working much as I decided to totally f-up my foot on Halloween nite while movin, yup broke da sucka... Shiats, what to do?? Any way I look forward to meeting up witcha---soon brudda. Jon Z.
Dear Kellie, Thanks for doing the follow up for us in this blog so I can come here and get updated since I can not do text messaging (I know I suck =___=?) I wish you both have good rest and welcome home :D~
Sally&Rudi
We are so glad to hear things went so well for you at Mayo. Good luck with the flight home and thanks for keeping us updated. Hope you're feeling back to yourself really soon.
-Keri & Jeremy
Post a Comment